Family Resources
Families and caregivers of individuals with dual diagnosis face higher levels of stress compared to their counterparts. Common family stressors may include:
- Coordinating complex services
- Chronic caregiving demands
- Behavioral and mental health challenges
- Emotional strain
- Uncertainty about the future
- Lack of knowledge on existing resources
- Not knowing ‘where to start’
Respite
Respite refers to short-term, temporary care provided to an individual with disabilities or complex needs, allowing primary caregivers time to rest, attend to personal responsibilities, or recharge. Respite can be provided in the home, in community settings, or through structured programs, and is an important support for maintaining caregiver well-being and long-term sustainability of care.
ARCH National Respite Network & Resource Center
Provides national information, tools, and support to help families locate and access respite services. Offers guidance, training resources, and connections to state and local respite programs.
Connects families in Illinois to respite care options, funding opportunities, and local support networks. Focuses on improving access to temporary caregiving support for individuals with disabilities and their families.
Other Resources
The Arc of Illinois Family Support Network
The Family Support Network works to uncover the resources, funding, and services needed to help people with developmental disabilities live fulfilling lives in their own homes. By focusing on the needs of both family members and individuals, they help break down barriers to clear the way for long-term success.
Illinois’ Division of Specialized Care for Children (DSCC)
Parents and caregivers of children with special healthcare needs should have a strong support system. The University of Illinois Chicago’s Division of Specialized Care for Children (DSCC) is here to coordinate that support. DSCC is a statewide program that partners with Illinois families and communities to help children with special healthcare needs connect to the services and resources necessary to reach their full potential. Each state receives federal funds to improve the health of children and youth with special healthcare needs. DSCC has been the designated program for Illinois since 1937. DSCC guides families through their child’s journey with a medical condition. We also work with doctors, schools and community groups to create a seamless support system. Our team partners with families to develop a plan of care that addresses a child’s medical, social, behavioral, educational and financial needs. This process is called care coordination. It is free for all children with eligible medical conditions, regardless of their family’s income level.
This 20-minute video training was developed by the Illinois NTI to support family caregivers of people with dual diagnosis of intellectual and developmental disabilities (IDD) and mental health conditions in creating trauma-informed environments for their family members.
A Harvard-curated resource offering accessible information and insights on a wide range of mental health topics. Designed to increase understanding, reduce stigma, and support connection through educational content.
A collection of humorous and relatable stories written by families of individuals with disabilities. Promotes connection, validation, and emotional support through shared lived experiences.
Care Mapping: A How-To Guide for Patients and Families
Provides step-by-step guidance for organizing and visualizing a loved one’s care needs, providers, and supports. Helps families coordinate services and plan more effectively.